6 Month Check Up

Miss K saw Cardiology today. Getting an EKG wasn't as bad as last time, I was way more prepared for her reaction lol, I took her favorite blanket and beloved "Bow" the elephant in with us to help calm her and this times nurse let me hold her while we put the "stickers" on, hooked her all up and even let me keep holding her through the EKG (the last nurse swore it would mess with the reading and wouldn't let me hold her), we wrapped her in her blanket and put stickers on "Bow" and she calmed right down for the whole reading, got a somewhat normal heart rate for her EP Cardiologist to look at . Since we just saw him a month ago for her Bradycardia scare today wasn't really necessary but he failed to mention that until he realized who he was seeing lol, he felt bad for having us come in but I was happy to do it since last time was a fly by just for an EKG reading we didn't get to really talk with him, this time I took as much of his time as I could and we really talked .

Miss K is doing great according to her EP Cardiologist.  He feels that since she hasn't had any known SVT since December that she may very well have outgrown her PJRT! But he also doesn't want to push our luck and is going to keep her on her Digoxin and Propanolol until she's 3 years before trying any lowering of doses or stopping all together just in case she isn't having SVT solely because of lack of weight gain, we will see if this is the case in a year IF she isn't like her big brother and instead gains some more weight in the next year lol. Her murmur that we just found in March is still there but he says it's not a hole, it's just a different sound in her heart and over 80% people have this different sound and he's sure it's harmless because all her past Echo's have shown a perfect structure and no defect.
Some readers tend to take news like this out of perspective.  That last paragraph does not mean Miss K is now "OK", it by far does not mean that she HAS outgrown her PJRT nor does it mean we are out of the danger zone at all.  SVT free for over 1 year can still just mean her medications are working, a lot of kids who go that long have been taken off of their medications and have had severe SVT resulting within days or weeks of the medications leaving their systems.  Miss K has only gone 8 months SVT free, we MUST take into consideration that she has barely gained just 1 pound since last October when we started the Digoxin and adjusted her Propanolol dose.  There is a very great chance that she has been SVT free this long only because she has not gained much weight.  I am completely OK with following the EP Cardiologists recommendation to keep Miss K on both medications at their current doses until she is 3, it seems a bit reckless to start weaning off of either medication right now, we need to be careful with this process and take it slowly and one step at a time.  We also need to remember that PJRT is not a temporary condition, even if a child is considered to have outgrown it it has a very high potential of presenting itself again later in teen years or as an adult.  This is a serious heart condition that is NOT going to just go away forever, we can always hope that it will but we MUST remember that it is very unlikely.


Miss K is 2 Years Old

Very bitter sweet.  I am so proud of my baby girl for hitting her 2nd birthday and doing so well in the past year!  Of course I am happy she is growing and changing into a beautiful little girl.  But I am so sad to see the baby leave and the little girl come.  She has been our "baby girl" for 2 years, we still call her baby girl around here, but in the past few weeks she has changed a lot in many ways, not only does she no longer act like a baby but she also no longer looks like a baby.  She has completely lost the baby looks and gained the little girl looks, but of course she is still adorable.
Miss K now weighs 20.4 pounds and is 33.4 inches tall.

She is doing great!  We have now made it almost 8 months SVT free, a very amazing big deal for Miss K.  The most amazing part is the 2 fevers she has endured and made it through with no SVT, her heart rate barely went up enough for us to even notice a faster rhythm than normal.  She has also made it through not 1 but 2 missed doses of Propanolol and had absolutely NO SVT, quite the change from her normal SVT episodes within 24 hours of the missed dose!  I posted about missing a dose just before July 24th but I have yet to mention the next missed dose...just this past weekend while visiting her grandparents, Daddy was out of town and Mommy was quite tired and distracted and somehow completely forgot the morning dose of both Propanolol and Digoxin, I didn't realize I had missed them until around 1:30PM, yes that's right it took clear until afternoon and around the time for her usual 2nd dose for the day before I realized we had missed her morning dose.  I opted to just consider the Propanolol afternoon dose skipped and gave her what would have been her normal morning dose at that time, then at bedtime I gave her her evening dose of both.  I worried that since we had missed a dose barely a week before that she would have SVT from this missed dose but I was pleasantly surprised to never catch any SVT :o).  I know without a doubt her EP Cardiologist is going to love hearing this news.

Miss K is our amazingly mischievous little princess.  She is into every kind of mischief possible, things her older brother never would have dreamed up doing she is quick to discover and is great at making Mommy go completely nuts throughout the day.  She is very active and very fast, before I can get one mess of hers cleaned up she is making/into another mess.  She is adorably lovable and full of snuggly hugs.  She loves to be snuggled and loved on, when she's not too busy anyway.  She is a princess without a doubt.  She loves to play dress up, take care of her baby dolls, have her nails painted, have Mommy put eye shadow on her, wear jewelry, have her hair done, were hair bows and flowers, she absolutely loves to wear dresses, and her favorite and most preferred color is PINK.


Please forgive the mess...

A week ago I made the huge mistake of trying out a new blog template...it resulted in disaster :o(.  The template loaded wrong and ended up deleting all my page elements except a crazy old "about me" section, the blog posts list and, of course, the blog posts themselves.  I cannot get any of the other stuff back :o(.

So bear with me in the next few days/weeks as I try to put this blog back together again.  Things will change, I guarantee I won't be able to find all the websites and other blogs I had listed :o( at least not for a little while anyway.

On to better news...I will be taking a minute in a day or two (or three or four lol) to update everyone on Miss K now that she's turning 2 this week...yes that's right, Miss K is turning 2 YEARS OLD!  I can't believe she's growing up so fast.  Check back often for her update :o).